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Tony: The Road to Power Mobility
Process Story
 

sketch of boyThe Road to Power Mobility

When Tony was three and half years old, the PT and OT in the EI program felt a power chair would be a good option to give him some independence in his mobility, at least at school. They felt that this was a reasonable plan because:

  1. Tony had a great desire to be independently mobile;
  2. his cognitive skills were within the normal range;
  3. he had a good idea of his body in space/direction;
  4. he had some gross control of his UE’s.

There were numerous other attitudes and reactions on this topic, however:

  1. Family was concerned about getting him any kind of wheelchair- they felt it meant they had to give up their dream of him walking.
  2. Tony’s original classroom teacher felt that the family was “in denial” about walking but did not feel powered mobility was appropriate – believing it could add to the tension in the family. In contrast, Tony’s teacher when he was four years old was open to new possibilities.
  3. Other team members (social worker, psychologist, classroom aide) were worried that he could not handle a power chair or learn to use it efficiently. Some questioned his cognitive abilities. Tony’s PT felt his functional cognitive abilities were within the normal range for his age and requested a motor-free (or at least motorically simplified) cognitive evaluation.
  4. The pediatrician did not feel he was old enough to use powered mobility
  5. Finding a chair he could learn to get into and out of with some level of independence was expected to be problematic.
  6. His insurance has been slow with other purchases and denied requests for equipment in the past.
  7. His physiatrist was on board and willing to write recommendations for the power wheelchair.
  8. Some were concerned about Tony’s upcoming transition to a new (public) school. Would this piece of equipment promote independence or turn out to be limiting in that setting?
 
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This curriculum was funded by grant #H 133B001200 from the National Institute of Disability and Research, U.S. Department of Education
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