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Tony: The Road to Power Mobility
Process Story
 

Lessons Learned:

  1. Team collaboration was vital – lots of competing concerns needed to be identified, addressed before being overcome.
  2. Securing the funding can be expected to be a lengthy process requiring dogged persistence.
  3. The EI team concluded they should have consulted an AT team available in the area to make the process more informed and more efficient.
  4. The EI Team recognized as a key flaw that they had applied no coherent logical decision making process. They concluded that the process could have been greatly improved by use of a decision framework throughout the process – from considering power mobility through power chair evaluation, to specification, pursuit of funding, user training, daily use, and maintenance.
  5. In retrospect, the EI team concluded that there might have been other easier ways to get started, for example adapting a motorized kids’ toy car.
  6. The need for advocacy was continuous from start to finish. Members of the EI team, the PT and OT in particular, had to promote their vision of Tony’s capabilities (cognition, communication, his desire for independent mobility, developmental appropriateness) every step of the way. Their willingness and ability to be his vocal advocates was essential and powerful.

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This curriculum was funded by grant #H 133B001200 from the National Institute of Disability and Research, U.S. Department of Education
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